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Everyone wants to feel that they're in control of their own life and
can do the things they want to, when they want to. They want to feel
capable, and that they're respected. They want to feel comfortable in
the social situation they're in, and have a general feeling that all
will be well. To help achieve this, keep in mind the following
techniques as you help your loved one.
Explain as you go
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Explain as you go what it is you're going to do and why, as a
matter of course - for example, if you're helping them put on coat
explain you need them to straighten their arm so you can get the
coat sleeve on, rather than silently manhandling their arm into the
sleeve. In this example, repeat the explanation for the second
sleeve.
Demonstrate
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They may find it easier (and less embarrassing) to understand what to
do if they can copy you. For example, if you eat with them then they can
see you pick up the knife and fork and see what to do, or you may be
able to remind them how to brush their teeth by miming the brushing
action.
Do things as 'we'
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Do things as 'we', since this can avoid putting them in a
quandary as to what to do or decide – for example, say "Shall we
have a cup of tea?" or if you feel you need to direct them say
“Let's try this one, it looks nice”.
'Signpost' the time and current activity
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Take opportunities to 'signpost' the time and the current
activity throughout the day -
for example saying "It's eleven o'clock so here's your elevenses, then you can just listen
to the music". You might add "I'll let you know when
it's lunchtime in an hour or two, but we'll listen to the music
first" - if you find that helps them feel more at ease with the day,
rather than sets them thinking they have to worry about when lunch
is. They may simply want to know that there's nothing in particular
they have to be doing or that they have to remember to do some time
later.
Avoid complex directions
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Avoid complex directions that give more steps or more
information at once than they can cope with - for example avoid
saying "We need to put on your coat and your shoes and warm hat so
we can get into the car and go to the park". Their head may be left
reeling with a sequence of things they think they need to remember
to do but can't remember. In this example, start with the nice news
about going to the park, then after a short pause explain you're helping
them put on their coat, and once that's done move on to the shoes,
and so on.
How to phrase things
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Try to phrase things so they can't be misunderstood if only
partially heard or taken in - for example, if they're manoeuvering
a walking aid round to sit in a chair say "Keep going a bit further"
rather than "Don't sit down yet" which might be misheard as "Sit
down".
How to ask questions
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Avoid asking questions that are beyond their memory capabilities
and leave them feeling unsettled - for example, rather than
enquiring what they had for lunch you could 'ask' a more general
"I hope you had a nice lunch(?)", since that stills shows your
interest but only requires an easy answer if one at all. Of course
if that question makes them struggle to remember whether they've had
lunch at all then you could try some other topic instead.
The age they think they are
Be aware that they may think of themselves as being 39, and not
the old face in a photo you show them. If that's the case then use
birthday cards without their age printed on.
Don't draw attention to mistakes
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Don't draw to their attention that they're mistaken over
something significant, as that can be deeply unsettling to them. For
example, if they say they need to go back to work that afternoon
otherwise they'll have their pay docked then don't tell them they're
retired, try saying something like they'd better have a good lunch
first; or if they think they need to go straight away then you could
try saying it's a holiday today.
Maintain their capabilities
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Try to maintain their capabilities while they can safely do so,
and don't take over unnecessarily. For example, walking (with some form of aid such as a rollator if
necessary, and over short distances if necessary) is good exercise
and helps delay muscles weakening to the point they can't
walk or stand up from a chair. Similarly, if they can use the remote
control for the television then encourage them to do so, rather than
taking over for speed or with the thought that it's helpful to do
everything for them. Obviously if they aren't able to do it then
help, and you may find they can do it on some days and not on
others. Try to prompt them, rather than going straight to doing it
for them, where you find that works.
Maintain their social contacts
Try to maintain their social contacts with friends while they
want to - for example assisting visits or phone calls.
Maintain their activities and hobbies
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Try to maintain their activities and hobbies where possible,
adapting them if required - for example, someone may no longer enjoy
painting because they feel they can't produce good results, but they
may enjoy using stencils, a Spirograph, or 'scratch art'. Also consider
new activities - see our section on entertainment.
Allow independence and offer choices
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Allow independence and offer choices where possible, but if they
can't decide then gently help make the decision rather than leaving
them to struggle with it - for example offer a choice between
listening to the radio or watching the television, or between a
couple of options of what to wear, or which microwave meal to be
cooked. If they can't decide you can always say "This one looks
nice" and go for that.
Chat frequently
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Chat frequently, even if just for short periods - it's reassuring to
someone with dementia to have the underlying
impression that they're in contact with you periodically, even if
they can't remember when or how. Be careful if this makes them feel
they have to stay beside the telephone all day because they don't
know when to expect a call. We have advice on unaided
video calls, & phones. If they're unable to speak, or find it
difficult to make conversation, then speak as if to yourself so they
can join in but don't have to - and it may still feel to them like a
conversation they're taking part in. Similarly, if you're going past while busy
around the house (or past someone else in a care home), a pause with
a little wave and smile can do a lot of good.
Hold their hands
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Holding one or both hands can be very comforting - this can just be
gently overlapping the fingers, rather than a handshake hold. Some
recommend gently massaging the hand as a soothing technique.
Some people with dementia may grip around one or two of your
fingers and squeeze very tightly - for the sake of your fingers
avoid that recurring by positioning your hand on top of theirs (i.e.
on the back of their fingers) rather than inside their hand.
Put on a smile
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Put on a smile and a happy face and reassuring manner, even when
things don't make you feel like that - this affects their feelings
positively through emotional mirroring
(and that in turn will help you too).
Engaging and purposeful activities
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Have some activities and entertainments that are engaging and
purposeful, rather than all entertainments being passive where they
just watch something. See our section on entertainment.
Their environment
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Make sure their environment (both the home and their daily life)
makes them feel safe, settled and supported, including with
'signposting' for place, time of day, and contact with others. See our
section on the home environment.
Keep familiar things around
Keep familiar items and photographs, and people, around them to
retain their sense of belonging where they are.
Structured daily routine
Have a reasonably structured daily routine, to help them keep in
step with the time of day.
Interpret their behaviour
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Particularly if their behaviour seems distressed or peculiar,
use our section on interpreting behaviour to consider the
many potential causes and try to identify a way of improving things.
It's also worth considering these potential factors proactively even
if there aren't obvious issues, as you may still find improvements
that can be made.
Try later instead
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If they're reacting against doing something that could be
postponed, for example they don't want to have their hair washed and
you can't find why, then try doing it at another time.
Don't impose norms unnecessarily
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If they're insisting on doing something you think is peculiar,
before rushing to impose your norms consider whether it really
matters - for example if they eat dessert before the main course it
isn't going to harm, so long as they have enough room for the
nutritional main course too (and if not then perhaps reduce the size
of the dessert portion next time). After all, it may be the norm for
us to eat dessert at the end of the meal now, but a few hundred
years ago Henry VIII had banquets with sweet and savoury dishes
served and eaten together.
Redirect rather than say 'no'
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Try to avoid saying an outright no to what they want to do,
which would be frustrating for anybody - if it's something they
can't be allowed to do then try to redirect their goal to something
else instead. This could take the form of distracting them with
another thing they'd like to do, perhaps framing the transition
between goals as 'we need to wait before we're able to do that' or
'we need to do this other thing first'.
Account for hearing difficulties
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If they're hard of hearing, then apart from making sure the
cause is checked out (see hearing test),
make sure they can see your lips,
and if you have a high pitched voice then try speaking in a slightly deeper (but normal) voice if you can.